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SPINA BIFIDA- PATIENT INFORMATION
2. Management of orthopedic problem:
The deformities and contractures, which are not managed by the regular stretching exercise and physiotherapy, are treated surgically.

3. Rehabilitation:
An infant with spina bifida and hydrocephalus will usually have delay in development. This may be present from birth. It is due to several reasons

  • Long periods of time in hospital after birth
  • Parent’s concerns about having infant with spina bifida and knowing how to handle the child
  • The infant’s heavy head due to hydrocephalus making it difficult to gain head control.
  • The infant’s difficulty in learning to move due to muscle paralysis, contractures and deformities.
AIDS used in rehabilitation
All children should be given opportunity to stand and walk. The child can be stood as soon as he has sufficient head control and balance in his body. Standing encourages the muscles that hold the body up to walk. It prevents contractures and strengthens leg bones. If the child does not have muscle strength in the legs, aids such as gaiters, forward lean standers or an upright stander may be used.

Learning to walk should be fun and not a task. The child needs to gain confidence slowly. Special aids such as splints or calipers may be necessary to support the legs during walking. As the balance and confidence with walking improves; the child may be able to use crutches or walking sticks for support. For some children the effort of walking is too great. This may be difficult for the family to understand and accept. They may need to talk about it and not push the child to walk. These children may use a wheelchair or trolley for all or part of the body.

SCHOOL ISSUE:
School is an important place for learning, developing skills and social interaction. Children with spina bifida can enjoy the usual range of school activities. Some children with spina bifida are usually mentally normal but majority of the children will have learning difficulties. The children may be good at some activities and have difficulties with other activities. Given appropriate help and guidance children with learning difficulties will be able to benefit from going to school. So schooling is a very important issue in children with spina bifida and parents must be encouraged to send their children with spina bifida to school.

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Last updated on 30-10-2001

 


 
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