4th Pediatric Infectious Diseases Conference
 
 
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Specialist Answers
Question
Hi, My 6 yr old daughter just got diagnosed w/Turners Syndrome. I am beside myself - crying, feeling depressed. She hasn't had any further testing, so we are praying that her only symptom is her short stature. I am looking for a support group. So far, I have surfed the web, but the ones I have found all want you to pay a lot of money to become a part of their group. Do you know of any reputable support groups for Turners kids and parents? Are these that I have found that are asking for money reputable? Thanks in advance for your reply.
Answer
The clinical characteristics of Turners syndrome varies in different individuals. Some may just have short stature whereas some may have all the features. You can read more about Turners syndrome from www.pediatriconcall.com or from the link given below:

http://www.pediatriconcall.com/forpatients/commonchild/Genetic_disorders/
turner_syndrome.asp


Regarding support group, find one in your city as it would be better to be in close and personal contact with them rather than in some distant city. Consult your local doctor to help you find such a group. If not, start a group of your own so that other families can also become members.

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