B Rameshbabu1, KS Kumaravel1, J Balaji1, P Sathya2, N Shobia1.
1Department of Pediatrics, Government Dharmapuri Medical College, Dharmapuri, India, 2District Early Intervention Centre, Government Dharmapuri Medical College, Dharmapuri, India.
ADDRESS FOR CORRESPONDENCE Dr. K S Kumaravel, 191A, Shankar Nagar, Salem 636007, Tamil Nadu, India. Email: kumaravelks@rediffmail.com Show affiliations | Abstract | Aim: Rashtriya Bal Swasthya Karyakram (RBSK) is aimed at screening children for 4 Ds - Defects at birth, Diseases of childhood, Deficiencies and Development Delays including Disabilities and early intervention of these conditions. This study is aimed at finding the pattern of various health conditions screened under the 4D’s approach.
Methods and Materials: This is a one year observational study done in District Early Intervention Centre (DEIC), Dharmapuri, Tamilnadu. Children referred to DEIC were screened by the pediatrician as per Rashtriya Bal Swasthya Karyakram (RBSK). The profile of the children who attended the DEIC like age, sex, place of referral, diagnosis, treatment given and outcome were tabulated and analyzed. An analysis of the manpower available during the study period was also done.
Results: During the study period, 7416 children were found to have one of the listed 30 conditions under 4D’s approach of screening. Childhood diseases were seen in 3060 (41.3%) children followed by developmental delay in 1432 (19.3%) children, deficiencies in 1087 (14.6%) children and defects at birth in 804 (10.8%) children. Among the defects at birth, congenital heart diseases were the commonest screened condition found in 437 (5.9%) children. About 192 (2.6%) neonates were found to have Retinopathy of Prematurity of varying grades. On analysis of deficiencies, severe anemia was observed commonly in 628 (8.5%) children. There were 250 (3.4%) children with severe acute malnutrition. On analysis of childhood diseases, dental caries were seen in 1719 (23.2%) children and skin conditions in 553 (7.5%) children. About 44 (0.6%) children were found to have rheumatic heart disease. On analysis of delays and disabilities, vision impairment like squint and refractory errors were the commonest screened condition seen in 1080 (14.6%) children. Neuro-motor impairment were seen in 78 (1%) children, language delay in 99 (1.3%) children and learning disorders in 88 (1.2%) children were the less frequently observed disabilities. There were 9 (0.1%) cases of behavioral disorders including autism and were treated with multi modal therapy including sensory integration. All the posts except early interventionist/special educator and dental hygienist were occupied throughout the study period.
Conclusion: Through RBSK India has taken giant step for screening and early intervention for defects at birth, childhood diseases, deficiencies and disabilities. The shortage of specialist manpower like special educator is of major concern and youngsters should be motivated to take up rehabilitation sciences as a career option.
| | Keywords | District Early Intervention Centre, Rashtriya Bal Swasthya Karyakram, child health screening, early intervention, disabilities. | | Introduction | Out of every 100 babies born in our country every year, 6 to 7 babies have a birth defect.1 This will mean 1.7 million birth defects occur annually and will also account for 9.6% of all neonatal deaths.1 Under nutrition or nutritional deficiencies affecting the preschool children ranges from 4 to 70% in our country.2 Developmental delays are also common in early childhood affecting at least 10% of our children. Special Newborn Care Units (SNCU) Technical Reports have estimated that approximately 20% of babies discharged from SNCU are found to suffer from developmental delays and/or disabilities at a later life.3 These delays, if not intervened early, may lead to permanent disabilities in cognition, hearing and vision. There are also many diseases which are very common in children e.g., dental caries, otitis media, rheumatic heart disease and reactive airway diseases which should be treated early. Early intervention and management can prevent these conditions from progressing into severe forms and reducing hospitalization.1
Rashtriya Bal Swasthya Karyakram (RBSK) or Child Health Screening and Early Intervention Services is a new initiative by the Government of India launched in February 2013 which is aimed at screening children for 4 Ds - Defects at birth, Diseases, Deficiencies and Development Delays including Disabilities.4 The target group under RBSK program is estimated to be 27 crore children under the age of 18 years and is divided into three age groups – 0 to 6 weeks, 6 weeks to 6 years and 6 years to 18 years.5 Under its organizational structure, Accredited Social Health Activists (ASHA’s) and Mobile Health Teams (MHT) will do the community screening, while the District Early Intervention Centers (DEIC) located in the District headquarters will screen, diagnose and treat children referred from the community. Further all neonates delivered in institutions will be screened by a pediatrician in Delivery Point Screening. DEICs are well equipped to attend to the children referred from the community and have the following specialists – Pediatrician, Medical Officer, Early Interventionist, Speech therapist, Audiologist, Optometrist, Lab technician, Dentist and a Dental Hygienist apart from the clerical staff. Children diagnosed with any of the 30 listed health conditions shall receive follow up treatment including surgeries at tertiary level, free of cost. The services provided by DEIC include occupational and physical, psychological, cognitive, audiological, language, vision, speech, and nutritional therapies apart from laboratory services. DEICs also provide other ancillary services like assistance in getting disability certificates.
Significant progress has been made in reducing mortality in children in the past decade. Further reduction in mortality is possible by early detection and management of health conditions in children. With improvements in health care facilities, the incidence of survival of infants with birth defects is increasing.6 Also, the burden due to non-communicable diseases will greatly increase in India unless early and appropriate interventions are made.6
This study is aimed at finding out the pattern of various health conditions screened under the 4D’s approach in children attending the DEIC in our hospital. An analysis of the specialist manpower available during the study period was also done.
| | Methods & Materials | This was a one year observational study done from Jan 2018 to Dec 2018 in DEIC, Govt. Dharmapuri Medical College Hospital, Dharmapuri, Tamilnadu. Dharmapuri is one of the backward districts situated in northern Tamilnadu and has 8 blocks. Each block has one male and one female doctor heading a MHT. These MHTs carry out the screening of children in their block and refer children suspected or identified with any of the 30 conditions to the DEIC. The study population was formed by the children with any one of the 30 conditions referred to DEIC from the peripheral RBSK units, neonates screened at Delivery Point Screening in the hospital, children referred form the pediatric out-patient clinic and also children who come on their own. On arrival at DEIC, children were screened by the pediatrician as per RBSK operational guidelines and appropriate treatment was given.7 Elaborate guidelines for setting up and functioning of a DEIC are clearly given by RBSK.7 The profile of the children who attended the DEIC like age, sex, place of referral, diagnosis, treatment given and outcome were tabulated and analyzed. An analysis of the manpower available during the study period was also done. | | Results | The results are tabulated in Tables 1 & 2. During the study period, 7416 children who attended the DEIC were found to have one of the 30 conditions under 4D’s approach of screening. There was no referral from ASHA’s during the study period, as all the MHTs in the district were manned by medical graduates.
On analysis of the 30 conditions screened under 4D’s approach, childhood diseases were seen in 3060 (41.3%) children followed by developmental delay in 1432 (19.3%) children, deficiencies in 1087 (14.6%) children and defects at birth in 804 (10.8%) children. There were 523 neonates screened for Retinopathy of Prematurity (ROP) during the study period and 192 (2.6%) neonates were found to have ROP of varying grades. Three neonates were treated with laser photo-coagulation therapy and 6 neonates were treated with injections of bevacizumab. Rest of the cases with ROP resolved spontaneously. There were 250 (3.4%) children with severe acute malnutrition and they were treated in the Nutritional Rehabilitation Centre attached to the hospital. There were 44 (0.6%) children with rheumatic heart disease and they were registered for penicillin prophylaxis. There were 9 (0.1%) cases of behavioral disorders including autism screened during the study period and were treated with multi modal therapy including sensory integration and occupational therapy. RBSK has given a great impetus to the treatment of children with disabilities like autism. Elaborate guidelines were given for establishment of specialized therapies like sensory integration therapy.7 All the other developmental delays like cognitive delays, language delays, behavioral disorders and learning disorders were diagnosed and treated with the help of Psychiatry department in the hospital and the psychologist attached to the DEIC.
There were 1033 (13.9%) children screened with other conditions like tongue tie, polydactyly, beta-thalassemia, congenital hypothyroidism, sickle cell anemia, obesity, phimosis, dermoids, hydronephrosis, microcephaly, dwarfism, hypospadias, undescended testis, osteogenesis imperfecta and bed wetting. These children were also enrolled and treated in DEIC.
On analysis of the human resources available in the DEIC, the posts of Pediatrician, medical officer, dentist, physiotherapist, optometrist and lab technician were occupied throughout the study period. The post of early interventionist and dental hygienist were vacant throughout the study period. The services of audiologist/speech therapist and psychologist were frequently not available during the study period and frequent resignations and new appointments were noted in these posts in the past also.
Table 1. Profile of children attending DEIC, pattern of referral, human resources availability and surgically treated conditions
Age and sex distribution of study group |
Age group |
Total (%) |
0 – 6 weeks |
1033 (13.9%) |
6 weeks – 6 years |
2586 (34.9%) |
6 – 18 years |
3797 (51.2%) |
Total |
7416 |
Pattern of referral to DEIC |
Place of referral |
No (%) |
Mobile health teams |
4740 (63.9%) |
Health facility/Delivery point |
275 (3.7%) |
Self-referral to DEIC |
2401 (32.47%) |
Total |
7416 |
Human Resources available in DEIC |
Specialist |
Availability |
Pediatrician |
Available |
Medical Officer |
Available |
Dentist |
Available |
Dental hygienist |
Not available |
Optometrist |
Available |
Physiotherapist |
Available |
Lab technician |
Available |
Early interventionist |
Not available |
Psychologist |
Frequently not available |
Audiologist & Speech therapist |
Frequently not available |
4D’s Conditions screened |
Defects at birth |
804 (10.8%) |
Deficiencies |
1087 (14.6%) |
Childhood diseases |
3060 (41.3%) |
Developmental delays and disabilities |
1432 (19.3%) |
Others |
1033 (13.9%) |
Total |
7416 |
Conditions treated surgically |
Condition |
Surgery done (No) |
Neural Tube Defect |
2 |
Club foot |
28 |
Cleft palate & lip |
18 |
Congenital Cataract |
2 |
Congenital Heart Diseases |
50 |
Table 2. Health Conditions screened by 4D’s approach
Sl. No |
Condition |
No (%) |
Defects at birth |
1 |
Neural Tube Defect |
24 (0.3%) |
2 |
Down's Syndrome |
29 (0.4%) |
3 |
Cleft Lip & Palate |
32 (0.4%) |
4 |
Club Foot |
72 (1%) |
5 |
Developmental Dysplasia of the hip |
5 (0.1%) |
6 |
Congenital Cataract |
5 (0.1%) |
7 |
Congenital Deafness |
8 (0.1%) |
8 |
Congenital Heart Diseases |
437 (5.9%) |
9 |
Retinopathy of Prematurity |
192 (2.6%) |
|
Total |
804 (10.8%) |
Deficiencies |
10 |
Severe Anemia |
628 (8.5%) |
11 |
Vitamin A Deficiency (Bitot’s Spot) |
9 (0.1%) |
12 |
Vitamin-D Deficiency |
18 (0.2%) |
13 |
Severe acute malnutrition |
250 (3.4%) |
14 |
Goiter |
182 (2.4%) |
|
Total |
1087 (14.6%) |
Childhood diseases |
15 |
Skin Conditions |
553 (7.5%) |
16 |
Otitis Media |
185 (2.5%) |
17 |
Rheumatic Heart Disease |
44 (0.6%) |
18 |
Reactive Airway Disease |
401 (5.4%) |
19 |
Dental Caries |
1719 (23.2%) |
20 |
Convulsive Disorders |
158 (2.1%) |
|
Total |
3060 (41.3%) |
Developmental delays and disabilities |
21 |
Vision impairment |
1080 (14.6%) |
22 |
Hearing impairment |
49 (0.6%) |
23 |
Neuro Motor impairment |
78 (1.0%) |
24 |
Motor Delay |
12 (0.2%) |
25 |
Cognitive Delay |
9 (0.1%) |
26 |
Language Delay |
99 (1.3%) |
27 |
Behavior Disorder (Autism) |
9 (0.1%) |
28 |
Learning Disorder |
88 (1.2%) |
29 |
Attention Deficit Hyperactivity Disorder |
8 (0.1%) |
|
Total |
1432 (19.3%) |
30 |
Others |
1033 (13.9%) |
| | Discussion | In the world, 64.3 children per thousand live births are born with birth defects every year.1 India with about 26 million births per year will have the largest share of birth defects in the world. RBSK program has undertaken the early identification and treating these defects at birth, which will yield rich dividends in nurturing the health of our children. In our study of screening of children under 4D’s approach, about 41.3% children had childhood diseases followed by developmental delays and disabilities (19.3%). In the childhood diseases we observed dental caries (23.2%) as the commonest condition followed by skin conditions (7.5%). In a community study by Tiwari in Madhya Pradesh, skin diseases (64%) were more prevalent than dental caries (6.8%).8 In another study by Sambo et al, skin conditions had a prevalence of 21%.9
On analysis of deficiencies, severe anemia (8.5%) was observed commonly followed by severe acute malnutrition (3.4%). In a study from the Nutritional rehabilitation Centre attached to this institute in the year 2014, an incidence of 5.1% was noted for SAM.10
On analysis of defects at birth, congenital heart diseases had a prevalence of 5.9%. The prevalence varied from study to study depending on the study population. In a hospital based study the incidence reported was 3.9/1000 live births.11 In a community based studies, the prevalence ranged from 0.8 to 5.2 per 1000 population.12,13
On analysis of developmental delays and disabilities, visual impairment conditions like squint and refractory errors (14.6%) were commonly observed. About 6.2% of children were found to have language delay in a study by Sidhu M.14 In our study we have reported an incidence of 1.2% for learning disorders. Learning disorder is a neurological disorder that affects the brain's ability to receive, process, store and respond to information. Various other studies done by Mogasale, Choudhary, Roongpraiwan, Shayawitz and Berger have reported a prevalence of 11.2%, 7.47%, from 6.9% to 9.0%, 6.3%, around 7% and 9,9% respectively15,16,17,18,19 for learning disorders. The large degree of variations in the prevalence depends on the study population and the awareness among the school teachers and parents about learning disorder. The behavioral disorders like autism were found to have 0.1% prevalence in this study. A study by Poovathinal reported 0.23% prevalence in semi-urban India.20 The disabilities found in this study may represent only the tip of the iceberg. More intensive screening and sensitization of teachers and parents will help in identification of more children with these problems.
The manpower analysis during the study period found that the post of early interventionist/special educator was vacant throughout the study period. The other posts of speech therapist/audiologist and psychologist were frequently vacant during the study period. Studies by Parmar and Bijaya Kumar Panigrahy also reported manpower deficiencies in DEIC.21,22 The shortage of specialist manpower especially in semi-urban and rural locations is a serious handicap to the treatment of children with disabilities. With the implementation of DEIC, the needs for these specialist manpower has increased tremendously across the country.
The major achievements of this DEIC were the surgeries done for congenital heart diseases, congenital cataract, club foot, cleft palate/lip and neural tube defects. Other treatments in the DEIC include distribution of hearing aids and spectacles, growth hormone replacement therapy and transfusion and iron chelation for thalassemia.
| | Conclusion | Under 4D’s approach of screening childhood diseases were the commonest condition screened. The idea of early intervention is to intervene early and minimize disabilities. Once the disability has already been established then the intervention will include enhancement of child development to reach the highest potential and prevent progression to handicap. Through RBSK India has taken giant step for screening and early intervention for childhood defects, diseases, deficiencies and disabilities. The unique feature of the RBSK Services is the continuum of care extending from birth to first 18 years of age. The shortage of specialist manpower like speech therapist and special educator in semi-urban and rural locations is of concern and youngsters should be motivated to take up rehabilitation sciences as a career option.
LIMITATION
This is a hospital based study and not a community study. So the prevalence of the defects and disabilities in the community cannot be estimated. | | Compliance with Ethical Standards | Funding None | | Conflict of Interest None | |
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DOI: https://doi.org/10.7199/ped.oncall.2019.48
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Cite this article as: | Rameshbabu B, Kumaravel K, Balaji J, Sathya P, Shobia N. Health Conditions screened by the 4D`s Approach in a District Early Intervention Centre (DEIC) under Rashtriya Bal Swasthya Karyakram (RBSK) Program. Pediatr Oncall J. 2019;16: 73-78. doi: 10.7199/ped.oncall.2019.48 |
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